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Matthew Ellinwood

Matthew Ellinwood

Salon

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To save lives, the FDA must change how it evaluates rare disease treatments

There are over 7,000 rare diseases that collectively affect more than 30 million Americans. Children and families struggling with these diseases need...

01.05.2024 10

Salon

Matthew Ellinwood

The FDA is failing children with a rare, neglected disease sometimes called "childhood dementia"

The effects of Sanfilippo syndrome in small children are so devastating that the rare disease is often known as "childhood dementia."  About one in...

17.01.2024 60

Salon

Matthew Ellinwood

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