By Eric Levine, Ed.D with Becky Shipkosky

Autism spectrum disorder, or ASD, refers to a neurodevelopmental difference with which about 1% of the world’s population (World Health Organization, 2023) and 2.2% of US adults are diagnosed (Centers for Disease Control, 2023). ASD is accompanied by comorbidities in 50 to 70% of autistic people (Hours et al., 2022), many of which are mental health and behavioral disorders, including:

In and of itself, autism is not a condition to be cured or recovered from, but certain aspects of life, including mental health, can be made easier and more manageable with proper support. Recent research indicates that mental health services are a tremendous piece of the support puzzle for autistic adults (Chan, Doran, 2023), and access to such services is woefully limited but growing (Maddox, Gaus, 2019).

At the most basic level, as Maddox and Gaus (2019) articulate, “Untreated psychiatric conditions in autistic adults are associated with a host of negative outcomes, including adaptive functioning impairments, difficulties with employment and independent living, and poor quality of life.” This unequivocally makes the case for helping autistic adults address mental health concerns, but it doesn’t get to the heart of why it’s so important to provide integrated and individualized care.

Carol Maher, Cooperriis’ neurodiversity coordinator, explains that an integrated approach provides opportunities for program participants to embrace their strengths and adapt. The key to this approach lies in the understanding that autism is an integral part of who a person is, and without space to express their full being, including autism, mental health recovery is not possible. No aspect of an individual’s self can be set aside in the recovery journey.

While sensory toys, noise-canceling headphones, and quiet rooms are an excellent step in the direction of accommodating autism in a recovery program setting, Maher lays out some tangible communication and support tools for deeper, autism-informed accommodations (Maher 2023):

Given the limited mental health services available to autistic adults, how can you find programs and choose the best fit for you or your loved one? Psychology Today has robust directories for both therapists and treatment centers. Upon visiting either of these pages, select your location and then select autism under the Issues tab.

Next, how do you know if something is the right fit for you or your loved one? Start with a list of therapists or residential programs who list autism among their areas of experience, and then sort for location and any insurance needs. From there, begin to call to find out if the provider is accepting new clients. At this stage, you can finally begin to screen for fit. Here are some points to consider in your search (Hansen, 2024) (Maher, 2024).

When you’re seeking a therapist or other non-residential mental health service, consider the following:

If you’re looking for an autism-friendly residential mental health program to help yourself or a loved one, the following qualities may also be important:

While the intersection of autism and mental health is lacking, as are so many such intersections, there is hope for ongoing improvement. Advocates are working to raise awareness at the government and community levels, and autistic adults and their families can help in big and small ways by educating their community, contacting legislators and governing bodies, sitting on advisory boards, or even simply signing petitions. The Autism Self Advocacy Network is a helpful entry point for anyone looking to get involved (Hemachandra, 2024).

References

Autism. World Health Organization. (2023, November 15). https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disord…

Centers for Disease Control and Prevention. (2023, April 4). Data & statistics on autism spectrum disorder. Centers for Disease Control and Prevention; CDC. https://www.cdc.gov/ncbddd/autism/data.html

Hours, C., Recasens, C., & Baleyte, J.-M. (2022). ASD and ADHD comorbidity: What are we talking about? Frontiers in Psychiatry, 13(837424). https://doi.org/10.3389/fpsyt.2022.837424

Chan, D. V., & Doran, J. D. (2023). Mental health counseling is rated as most helpful by autistic adults: Service perspectives in adulthood. Autism. https://doi.org/10.1177/13623613231197446

Maddox, B. B., & Gaus, V. L. (2019). Community Mental Health Services for Autistic Adults: Good News and Bad News. Autism in Adulthood, 1(1), 15–19. https://doi.org/10.1089/aut.2018.0006

Maher, C. (2024, March 1). Neurodiversity Accommodations in Mental Health Recovery (B. Shipkosky, Interviewer) [Personal communication].

Maher, C. (2023). Tools for Success in Working with Neurodiverse Adults. Staff training document.

Hansen, C. (2024, February 21) Neurodiversity Accommodations in Mental Health Recovery (B. Shipkosky, Interviewer) [Personal communication].

Hemachandra, R. (2024, March 7). Intersection of Autism and Mental Health (B. Shipkosky, Interviewer) [Personal communication].

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Mental Health for Autistic Adults: Finding the Best Provider

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20.03.2024

By Eric Levine, Ed.D with Becky Shipkosky

Autism spectrum disorder, or ASD, refers to a neurodevelopmental difference with which about 1% of the world’s population (World Health Organization, 2023) and 2.2% of US adults are diagnosed (Centers for Disease Control, 2023). ASD is accompanied by comorbidities in 50 to 70% of autistic people (Hours et al., 2022), many of which are mental health and behavioral disorders, including:

In and of itself, autism is not a condition to be cured or recovered from, but certain aspects of life, including mental health, can be made easier and more manageable with proper support. Recent research indicates that mental health services are a tremendous piece of the support puzzle for autistic adults (Chan, Doran, 2023), and access to such services is woefully limited but growing (Maddox, Gaus, 2019).

At the most basic level, as Maddox and Gaus (2019) articulate, “Untreated psychiatric conditions in autistic adults are associated with a host of negative outcomes, including adaptive functioning impairments, difficulties with employment and independent living, and poor quality of life.” This unequivocally makes the case for helping autistic adults address mental health concerns, but it doesn’t get to the heart of why it’s so important to provide........

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